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Patient- and Family-Centered Hospital Care—The Need for Structural Humility

4 Apr 2023 10:13 AM | Deborah Hodges (Administrator)

How was her night?” or “What questions or concerns do you have?” These common open-ended questions are often directed to caregivers (parents, family members, or guardians) of hospitalized children at the start of family-centered rounds. While these questions meet a lot of best practices for family-centered rounds, such as being open ended and starting with caregiver input, the level of caregiver engagement following these questions varies greatly. For example, while one parent might answer “fine,” another might describe symptoms and events in detail, including their opinions and preferences on their child’s care. This variability in participation is important given the critical role of caregivers in preventing medical errors, aligning goals of care, and optimizing pediatric hospital outcomes. [JAMA Network]

The current approach to communication during family-centered rounds operates under the assumption that patients and families will feel safe and empowered to participate when given the opportunity. However, this pretense fails to address how systemic inequities and lived experiences of individuals may influence interactions with health care systems. Several recent studies have demonstrated Black, Latinx, and other racial and ethnic minoritized groups feel less comfortable and empowered speaking up on family-centered rounds.1 While individual clinician biases and differences in communication likely contribute to this inequity, factors beyond that single encounter may also play a role. Indeed, factors both within the health care system (eg, past discrimination by clinicians, lack of language accessibility in the form of interpreters or signage, lack of diverse representation of clinicians and staff) and outside of the system (eg, racism, stigma, acculturative stress, social needs) can influence caregiver-clinician communication. Thus, even if medical teams use standardized and bias-free communication, family engagement and participation may not be equal across patients from different backgrounds.2 Without awareness of the structural factors that influence such communication, clinicians may interpret caregiver differences in communication in ways that reinforce stigma and stereotypes.

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